Holding Pattern

Have you ever been stuck on a flight that kept circling waiting to land.  How about one that is dealing with rough weather and turbulence?  That anxiety of being shakened around and the can't wait to land feeling going through your head.  That is how we feel.  We feel secure to know that ecmo is our airplane that can deliverance us by keeping him alive, but can kill him too if all of the turbelence fell just right.  We are waiting for his plane to land and for the surgery to begin.

We have been holding steady with the exception of our turbulence when the ecmo filter sprung a leak Friday causing the machine to be turned off for 1 minute and 10 seconds.  Johnathon was forced to survive on his own.  With the steroids given to help him during this situation, it caused his blood pressure and pulse to go crazy.  This forced a delay in our schedule.

The best we can tell is we lost a day.  On Thursday we were 60-55% on ecmo on Friday it was 85%.  As of today we have krept back down to 60%.  We were hoping that the Doctors strategy of surgery on Monday or Tuesday would hold, but we are in our holding pattern now.  Waiting to land. 

Since it is so late I will continue this post tomorrow.  Tiredness has gotten the best of me after playing hockey tonight.